Monday, November 19, 2012

Flying The Sometimes Not-So-Friendly Skies

So, you've decided to leave your happy corner of Myelomaville and go out-and-about on an adventure, hunh?

Travel can sometimes prove to be a daunting activity for many of us dealing with multiple myeloma. Following is an account of a quick trip that I took to San Francisco which recently appeared in the Myeloma Beacon.

Have a Safe and Happy Thanksgiving!

For the latest news and information in the myeloma world, please visit the Myeloma Beacon.


alexlondon said...


Discovered your blog yesterday. Thanks for making me laugh with the myeloma jokes.

"You should see the mad scramble when Oxycodone and Jelly Beans rain over the infusion center floor!"

...particularly appealed because oxycodone seems to be a regular feature of my 'eloma too.

Thanks too for being such a positive voice. I'm 39, with 3 children aged 7, nearly 5, and 7 months. I was diagnosed in August after stumbling while running and breaking 4 vertebrae. (And a 3 year backstory of undiagnosed broken ribs.) I'm nearing the end of 6 cycles of velcade, dox and dex and probably heading for my first SCT in the New Year. I hope I can continue to see this all for what it is in the context of the more important aspects of one's life, as you clearly do.

Best wishes

Alex Bicknell

Sean Murray said...

Alex: Thanks for your very nice comments. There's nothing funny about MM, but sometimes to keep from crying you have to laugh.

39! Any age is too young, but you are shooting to the top of my prayer list. You must be an over-achiever! The youngest MM patient that I've met is 19.

I've battled some major bone issues myself and can only imagine the pain you're dealing with. Multiple kyphoplasties helped me with my vertebral pain. I hope that you can find some relief.

I decided early on that I wanted to be able to look back and honestly say that MM didn't take any more away from my life than was necessary and that I gave my level best in the fight. I'll let you know how I did in about forty years!

When times get particularly tough, I try to remember that I'm not just battling for some guy named Sean, I am giving everything I have for Lizzie and Katie's daddy, and Karen's husband. Our children are worth every effort we can make; they will learn much through our struggle.

Hang tough, Alex! Please keep in touch. Sean

Alex Bicknell said...

Hi Sean

I'm heading in for SCT next week. Finally got round to starting a blog of my own to keep my family and friends in the loop.